Alex Shurba

Down Syndrome With Complete Atrioventricular Septal Defect 

We knew from the 20 week scan that our baby had a heart problem. Alex was born with Down Syndrome and Complete Atrioventricular Septal Defect.

When Alex was born he was well but didn't feed well and failed to thrive. Then began the whole alternative world of the stress of CHD, severe reflux and all that went with it. Alex is now fed by Gastrostomy Mic-Key Button and is on a blended diet.

I, Alex's mummy, was constantly depressed. Lagan's came into our lives in 2013 and continue to help me with managing feeding and care as well as giving me precious time for other things. Not to mention reducing my sense of isolation by giving me something/someone to look forward to every week. Thank you Lagan X




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