About Lagan's Foundation

Families who live with a child who has heart defects or a feeding difficulty have a stressful and difficult task ahead. Respite and support of any kind is invaluable. Lagan's Foundation, a Charitable Incorporated Organisation in England and Wales (1154208) aims to physically help support families who have babies and children up to 5 years old, diagnosed with heart defects OR feeding difficulties. Lagan's Foundation's purpose is to provide unique at home and in hospital care to support parents in their caring role.

It has been recognised through the experience gained whilst caring for Lagan, that coordinating and accessing, care and support services, once baby or child returns home from a specialist unit where they have received diagnosis, treatment or care, is a challenging, and overwhelming task for many parents.

Lagan's Foundation has been founded with a focus on bridging the gap between NHS Services and Community Care by providing an extra avenue of communication, support and information.

Our aim is that with support from the appropriate Care Centres and the Community Teams we can try to ensure parents and carers of babies and young children with aquired or Congenital Heart Defects OR feeding difficulties, receive the care and support at home and hospital that they need, deserve and are entitled to.

Lagan was a baby affected by complex congenital heart defects, due to this Lagan experienced feeding difficulties and was subsequently fed using the gastrostomy feeding tube otherwise known as the ‘PEG’ or in older children the ‘Mickey button’

Once Lagan was discharged home it became obvious that it was difficult to source any appropriate help to support caring for Lagan and to enable her family to have a short break. Lagan’s Foundation aims to included a weekly sitting service to help the parent / Primary Carer do simple tasks such as get a shower, have a short but well needed sleep or maybe make and have a meal.

The vision of Lagan's Foundation is to provide trained volunteers to assist families for just a few hours a week so that primary carers can take a short rest etc.

All volunteers will be fully DBS checked and have specific needs training to enable them to care for a child confidently.

At no time will the volunteer be left in the house alone with the child although they may be expected to care for a child whilst the parent is asleep or in another room.

The purpose of the volunteer will be to give the parent a break when they most need it, by offering an extra pair of hands to care for the specific child while the parent takes ‘time out’ in the home or at hospital.

Along with the caring role, Lagan's Foundation hopes to provide simple support, information and guidance to parents so that they understand the level of care and support they may be entitled to receive from the NHS, Local Authority and other services in their area.

Lagan’s Foundation is supported by Alder Hey Children’s Hospital Cardiac and Gastroenterology Departments and will be working closely with Royal Bolton Hospital for Donation and Bereavement related matters and other associated community groups.

Lagan's Foundation Charity Aims

  • To provide short at home respite care for families with babies and children under the age of 5 who have been diagnosed with acquired Congenital Heart Defects and/or Feeding difficulties
  •  To provide support and information resources to families with babies and children under the age of 5 who have been diagnosed with acquired or Congenital Heart Defects and/or Feeding difficulties
  • To offer bereavement support in times of need to families with babies and children under the age of 5 who have been diagnosed with acquired or Congenital Heart Defects and/or Feeding difficulties
  • To increase awareness and encourage expressed breast milk donation and its usage.

 

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CONTACT US

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Head Office: 01204 468300

Home Support & Volunteer Enquiries: 07729 298214

Fundraising Enquiries: 07486 313296