Lagan's Foundation is the first and only national charity that provides emotional and physical support via trained volunteers, to parents of children under 5 with Congenital or acquired heart defects (CHD) OR feeding issues at home or hospital.
Our home support service provides parents with a volunteer for a minimum of two hours. You may just want someone to talk to, or for someone to care for your child whilst you go to sleep, or maybe you would like your evening meal all together and our volunteer can support with that?
Are there siblings? We can play with them too, ensuring all of the children feel loved and cared for and everyone is integrated into family care routines.
AS PART OF THE COMPREHENSIVE SUPPORT, WE CAN OFFER
- A friendly face to chat to;
- Someone to help with day to day routines, feeding, bathing, changing, dressing etc at home
- Someone to watch your child at their hospital bed side whilst you go back to parent accommodation to get a meal or meet a friend or play with siblings.
- Someone to be capable of looking after your child while you have a sleep because you were up all through the night!
- Accompanying and supporting parents with their children to medical appointments, clinics, baby play groups and on walks out to the park etc.
- Signposting service to further support within the NHS and Care system.
- Support Groups (Jungle Clubs)
I am so glad that I finally plucked up the courage to contact Lagans Foundation for support. We now receive help from Emma once a week and it is brilliant. Our daughter Grace is 19 months and has ccTGA with a large VSD, she also has a twin brother. One of the best things is that I now feel that I have someone to talk to who really understands what it is like to have a child with a heart defect.
I would encourage anybody in a similar situation to contact Carren and make the first step.
Above and Beyond
This service is a life line to me and my family. This isn't just a charity, it's more like extended family! Being sat in a hospital waiting for your child to go for open heart surgery is devastating for any family but one call to Lagan's and there is someone there (who has been in the same situation) to support you and understand your thoughts and fears. The home service they offer is amazing. They come into your home and help out in whichever way they can. Very highly recommended!!!
Mere 3 years!
This is an amazing charity, that has come so far in a mere 3yrs. Without out the aid of this charity getting through the past two years would of been a lot harder my twin CHD warriors have come a long way and a lot of what we know about CHD's and the various specialist and other complications that came from the CHD's has come from them more often than not. This charity let me know we wern't the only ones out there going through such a confusing time.
Lagan's Foundation have supported me from the moment we found out about my daughter's heart condition at the pre natal 20 week scan. This charity provides many free services for many families who wish to be supported and helped. Definitely "Heart Felt Care" and I believe in what they are achieving and working towards so much so I now a volunteer for the charity. Met some wonderful people and it good to know other people understand where you are coming from when you find out your child is not classed as the normal healthy child!
Such a wonderful organisation a d I have gleaned more information from them on my daughter's heart condition than I did from all the medical professionals. There is always someone to talk to day or night and there is a Lagan's parent support group too. My baby's open heart surgery is coming up soon and it's great peace of mind knowing that my Lagan's volunteer can do hospital visits while I deal with my other children.